Botkin, Jeffrey R : rechercher sur Z-Library

Le plus grand référentiel d'articles scientifiques au monde. 70,000,000+ d'articles gratuitement.

Don't use scam websites

Livres
Articles (88)
Les plus populaires
Liste
- Liste
- Tableau

1

Are there Characteristics of Infectious Diseases that Raise Special Ethical Issues?

Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek, Beverly Hawkins

Journal:

Developing World Bioethics

Année:

2004

Langue:

english

Fichier:

PDF, 68 KB

english, 2004

2

Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis

Jeffrey R. Botkin

Journal:

The Journal of Law, Medicine & Ethics

Année:

1998

Langue:

english

Fichier:

PDF, 1.28 MB

english, 1998

3

Ethical and public health implications of genetic testing for suicide risk: family and survivor perspectives

Kious, Brent M., Docherty, Anna R., Botkin, Jeffrey R., Brown, Teneille R., Francis, Leslie P., Gray, Douglas D., Keeshin, Brooks R., Stark, Louisa A., Witte, Brieanne, Coon, Hilary

Journal:

Genetics in Medicine

Année:

2020

Fichier:

PDF, 332 KB

2020

4

Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Année:

2010

Langue:

english

Fichier:

PDF, 244 KB

english, 2010

5

Ethical issues in identifying and recruiting participants for familial genetic research

Laura M. Beskow, Jeffrey R. Botkin, Mary Daly, Eric T. Juengst, Lisa Soleymani Lehmann, Jon F. Merz, Rebecca Pentz, Nancy A. Press, Lainie Friedman Ross, Jeremy Sugarman, Lisa R. Susswein, Sharon F. T

Journal:

American Journal of Medical Genetics Part A

Année:

2004

Langue:

english

Fichier:

PDF, 106 KB

english, 2004

6

Genetic counseling and ethical issues for autism

William M. McMahon, Bonnie Jeanne Baty, Jeffrey Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Année:

2006

Langue:

english

Fichier:

PDF, 110 KB

english, 2006

7

HOW INFECTIOUS DISEASES GOT LEFT OUT – AND WHAT THIS OMISSION MIGHT HAVE MEANT FOR BIOETHICS

LESLIE P. FRANCIS, MARGARET P. BATTIN, JAY A. JACOBSON, CHARLES B. SMITH, JEFFREY BOTKIN

Journal:

Année:

2005

Langue:

english

Fichier:

PDF, 73 KB

english, 2005

8

Nine Key Functions for a Human Subjects Protection Program for Community-Engaged Research: Points to Consider

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Année:

2010

Langue:

english

Fichier:

PDF, 255 KB

english, 2010

9

The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Année:

2010

Langue:

english

Fichier:

PDF, 218 KB

english, 2010

10

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

Botkin, Jeffrey R., Belmont, John W., Berg, Jonathan S., Berkman, Benjamin E., Bombard, Yvonne, Holm, Ingrid A., Levy, Howard P., Ormond, Kelly E., Saal, Howard M., Spinner, Nancy B., Wilfond, Benjami

Journal:

The American Journal of Human Genetics

Année:

2015

Langue:

english

Fichier:

PDF, 309 KB

english, 2015

11

Every Child Is Priceless: Debating Effective Newborn Screening Policy

R. Rodney Howell, Nancy Green, Mary Ann Baily, Thomas H. Murray, Virginia Moyer, Steven M. Teutsch and Jeffrey R. Botkin

Journal:

Hastings Center Report

Année:

2009

Langue:

english

Fichier:

PDF, 986 KB

english, 2009

12

Concerns About Justification for Fetal Genome Sequencing

Botkin, Jeffrey R., Francis, Leslie P., Rose, Nancy C.

Journal:

American Journal of Bioethics

Année:

2017

Langue:

english

Fichier:

PDF, 326 KB

english, 2017

13

Genetic Exceptionalism in Medicine: Clarifying the Differences between Genetic and Nongenetic Tests

Green, Michael J., Botkin, Jeffrey R.

Journal:

Annals of Internal Medicine

Année:

2003

Langue:

english

Fichier:

PDF, 98 KB

english, 2003

14

An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots

Rothwell, Erin, Goldenberg, Aaron, Johnson, Erin, Riches, Naomi, Tarini, Beth, Botkin, Jeffrey R.

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Année:

2017

Langue:

english

Fichier:

PDF, 1016 KB

english, 2017

15

Attitudes toward the genetic testing of children among adults in a Utah-based kindred tested for a BRCA1 mutation

Hamann, Heidi A., Croyle, Robert T., Venne, Vickie L., Baty, Bonnie J., Smith, Ken R., Botkin, Jeffrey R.

Journal:

American Journal of Medical Genetics

Année:

2000

Langue:

english

Fichier:

PDF, 115 KB

english, 2000

16

Genetic testing for a BRCA1 mutation: Prophylactic surgery and screening behavior in women 2 years post testing

Jeffrey R. Botkin, Ken R. Smith, Robert T. Croyle, Bonnie J. Baty, Jean E. Wylie, Debra Dutson, Anna Chan, Heidi A. Hamann, Caryn Lerman, Jamie McDonald, Vickie Venne, John H. Ward, Elaine Lyon

Journal:

American Journal of Medical Genetics Part A

Année:

2003

Langue:

english

Fichier:

PDF, 140 KB

english, 2003

17

Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption

Vickie L. Venne, Jeffrey R. Botkin, Saundra S. Buys

Journal:

American Journal of Medical Genetics Part A

Année:

2003

Langue:

english

Fichier:

PDF, 69 KB

english, 2003

18

Addressing the “petty tyranny” of IRBs

Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part A

Année:

2005

Langue:

english

Fichier:

PDF, 34 KB

english, 2005

19

Effects of spouses on distress experienced by BRCA1 mutation carriers over time

Jean E. Wylie, Ken R. Smith, Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Année:

2003

Langue:

english

Fichier:

PDF, 141 KB

english, 2003

20

Genetic testing and the family

James R. Sorenson, Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Année:

2003

Langue:

english

Fichier:

PDF, 36 KB

english, 2003

21

Myocardial perfusion SPECT reconstruction: Receiver operating characteristic comparison of CAD detection accuracy of filtered backprojection reconstruction with all of the clinical imaging information available to readers and solely stress slices iteratively reconstructed with combined compensation

P. Hendrik Pretorius, Michael A. King, Howard C. Gifford, Seth T. Dahlberg, Frederick Spencer, Ellen Simon, Jason Rashkin, Naomi Botkin, William Berndt, Manoj V. Narayanan, Jeffrey A. Leppo

Journal:

Journal of Nuclear Cardiology

Année:

2005

Langue:

english

Fichier:

PDF, 297 KB

english, 2005

22

Communication Analysis of BRCA1 Genetic Counseling

Lee Ellington, Debra Roter, William N. Dudley, Bonnie J. Baty, Renn Upchurch, Susan Larson, Jean E. Wylie, Ken R. Smith, Jeffrey R. Botkin

Journal:

Journal of Genetic Counseling

Année:

2005

Langue:

english

Fichier:

PDF, 96 KB

english, 2005

23

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

Aaron J. Goldenberg, Sara Chandros Hull, Jeffrey R. Botkin, Benjamin S. Wilfond

Journal:

The Journal of Pediatrics

Année:

2009

Langue:

english

Fichier:

PDF, 249 KB

english, 2009

24

Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study

Erin Rothwell, Rebecca Anderson, Aaron Goldenberg, Michelle H. Lewis, Louisa Stark, Matthew Burbank, Bob Wong, Jeffrey R. Botkin

Journal:

Social Science & Medicine

Année:

2012

Langue:

english

Fichier:

PDF, 133 KB

english, 2012

25

Expanding Newborn Screening: Process, Policy, and Priorities

VIRGINIA A. MOYER, NED CALONGE, STEVEN M. TEUTSCH, JEFFREY R. BOTKIN, United States Preventive Services Task Force

Journal:

Hastings Center Report

Année:

2008

Langue:

english

Fichier:

PDF, 106 KB

english, 2008

26

Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

Rothwell, Erin W., Anderson, Rebecca A., Burbank, Matthew J., Goldenberg, Aaron J., Lewis, Michelle Huckaby, Stark, Louisa A., Wong, Bob, Botkin, Jeffrey R.

Journal:

American Journal of Public Health

Année:

2011

Langue:

english

Fichier:

PDF, 493 KB

english, 2011

27

Recommendations for returning genomic incidental findings? We need to talk!

Burke, Wylie, Matheny Antommaria, Armand H., Bennett, Robin, Botkin, Jeffrey, Clayton, Ellen Wright, Henderson, Gail E., Holm, Ingrid A., Jarvik, Gail P., Khoury, Muin J., Knoppers, Bartha Maria, Pres

Journal:

Genetics in Medicine

Année:

2013

Langue:

english

Fichier:

PDF, 295 KB

english, 2013

28

Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy

Rothwell, Erin, Anderson, Rebecca A., Swoboda, Kathryn J., Stark, Louisa, Botkin, Jeffrey R.

Journal:

American Journal of Medical Genetics Part A

Année:

2013

Langue:

english

Fichier:

PDF, 117 KB

english, 2013

29

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce

Journal:

Journal of Community Genetics

Année:

2014

Langue:

english

Fichier:

PDF, 194 KB

english, 2014

30

What parents want to know about the storage and use of residual newborn bloodspots

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca A., Goldenberg, Aaron, Kuppermann, Miriam, Dolan, Siobhan M., Rose, Nancy C., Stark, Louisa

Journal:

American Journal of Medical Genetics Part A

Année:

2014

Langue:

english

Fichier:

PDF, 105 KB

english, 2014

31

Proposed regulations for research with biospecimens: Responses from stakeholders at CTSA consortium institutions

Botkin, Jeffrey R., Anderson, Rebecca, Murray, Tom, Beskow, Laura M., Maschke, Karen, Cuttler, Leona

Journal:

American Journal of Medical Genetics Part A

Année:

2014

Langue:

english

Fichier:

PDF, 101 KB

english, 2014

32

The Irregular Terrain of Human Subjects Research Regulations

Forster, David, Nelson, Daniel K., Borasky, David, Botkin, Jeffrey R.

Journal:

Hastings Center Report

Année:

2014

Langue:

english

Fichier:

PDF, 237 KB

english, 2014

33

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Hamann, Heidi A., Croyle, Robert T., Smith, Ken R., Quan, Barbara N. M., McCance, Kathryn L., Botkin, Jeffrey R.

Journal:

Journal of Psychosocial Oncology

Année:

2000

Langue:

english

Fichier:

PDF, 113 KB

english, 2000

34

Preventing Exploitation in Pediatric Research

Botkin, Jeffrey R.

Journal:

American Journal of Bioethics

Année:

2003

Langue:

english

Fichier:

PDF, 111 KB

english, 2003

35

Residual newborn screening samples for research: Parental information needs for decision-making

Rothwell, Erin, Clark, Lauren, Anderson, Rebecca, Botkin, Jeffrey R.

Journal:

Journal for Specialists in Pediatric Nursing

Année:

2013

Langue:

english

Fichier:

PDF, 139 KB

english, 2013

36

Performance analysis of image processing algorithms for classification of natural vegetation in the mountains of Southern California

YOOL, Stephen R., Star, Jeffrey L., Estes, John E., BOTKIN, DANIEL B., ECKHARDT, DAVID W., DAVIS, FRANK W.

Journal:

International Journal of Remote Sensing

Année:

1986

Langue:

english

Fichier:

PDF, 722 KB

english, 1986

37

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce

Journal:

Journal of Community Genetics

Année:

2015

Langue:

english

Fichier:

PDF, 71 KB

english, 2015

38

Attitudes of Parents of Children with Serious Health Conditions regarding Residual Bloodspot Use

Nagaraj, Chinmayee B., Rothwell, Erin, Hart, Kimberly, Latimer, Seth, Schiffman, Joshua D., Botkin, Jeffrey R.

Journal:

Public Health Genomics

Année:

2014

Langue:

english

Fichier:

PDF, 162 KB

english, 2014

39

The Legal Concept of Wrongful Life

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Année:

1988

Langue:

english

Fichier:

PDF, 919 KB

english, 1988

40

Genetic Testing and Informed Consent-Reply

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Année:

1997

Langue:

english

Fichier:

PDF, 344 KB

english, 1997

41

Caring for the Poor

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Année:

1988

Langue:

english

Fichier:

PDF, 198 KB

english, 1988

42

Informed Consent for Lumbar Puncture

Botkin, Jeffrey R.

Journal:

Archives of Pediatrics and Adolescent Medicine

Année:

1989

Langue:

english

Fichier:

PDF, 957 KB

english, 1989

43

Informed Consent for Lumbar Puncture: An Alternative-Reply

BOTKIN, JEFFREY R.

Journal:

Archives of Pediatrics and Adolescent Medicine

Année:

1990

Langue:

english

Fichier:

PDF, 172 KB

english, 1990

44

Fleecing the Taxpayer to Develop a Fire-Safe Cigarette-Reply

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Année:

1988

Langue:

english

Fichier:

PDF, 190 KB

english, 1988

45

The Fire-Safe Cigarette

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Année:

1988

Langue:

english

Fichier:

PDF, 627 KB

english, 1988

46

Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research

Hull, Sara Chandros, Sharp, Richard R., Botkin, Jeffrey R., Brown, Mark, Hughes, Mark, Sugarman, Jeremy, Schwinn, Debra, Sankar, Pamela, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Wilfond, Benjami

Journal:

American Journal of Bioethics

Année:

2008

Langue:

english

Fichier:

PDF, 454 KB

english, 2008

47

Outcomes of interest in evidence-based evaluations of genetic tests

Botkin, Jeffrey R, Teutsch, Steven M, Kaye, Celia I, Hayes, Maxine, Haddow, James E, Bradley, Linda A, Szegda, Kathleen, Dotson, W David

Journal:

Genetics in Medicine

Année:

2010

Langue:

english

Fichier:

PDF, 248 KB

english, 2010

48

A framework for key considerations regarding point-of-care screening of newborns

Kemper, Alex R., Kus, Christopher A., Ostrander, Robert J., Comeau, Anne Marie, Boyle, Coleen A., Dougherty, Denise, Mann, Marie Y., Botkin, Jeffrey R., Green, Nancy S.

Journal:

Genetics in Medicine

Année:

2012

Langue:

english

Fichier:

PDF, 227 KB

english, 2012

49

Developing a National Registry for conditions identifiable through newborn screening

Botkin, Jeffrey R, Anderson, Rebecca, Staes, Catherine, Longo, Nicola

Journal:

Genetics in Medicine

Année:

2009

Langue:

english

Fichier:

PDF, 219 KB

english, 2009

50

Crushing Consent Under the Weight of Expectations

Botkin, Jeffrey R.

Journal:

American Journal of Bioethics

Année:

2015

Langue:

english

Fichier:

PDF, 297 KB

english, 2015